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 Disabilities and Disability Organizations Web Links

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• About.com Guide to Disabilities
  This site has information and articles on all Disabilities. If you know about Disabilities, are passionate about that knowledge, and want to help lead people to the best information the Net offers on that topic, apply to be a Guide at About.com
  disabilities.about.com
  
  
• National Association on Alcohol, Drugs and Disability Inc., (NAADD)
  NAADD promotes awareness and education about substance abuse among people with co-existing disabilities. The mission of NAADD is to create public awareness of issues related to alcoholism, drug addiction, and substance abuse faced by persons with other co-existing disabilities, and to provide a peer approach to enhance access to services, information, education and prevention through the collaborative efforts of interested individuals and organizations nationwide.
  www.naadd.org
  
  
• Dual Diagnosis Website
  Dual Diagnosis refers to co-occurring Mental Illness, Drug Addiction and/or Alcoholism in various combinations. This site provides information and resources for service providers, consumers, and family members who are seeking assistance and/or education in this field. This site is hosted by Sciacca Comprehensive Service Development for Mental Illness, Drug Addiction and Alcoholism, MIDAA.
  pobox.com/~dualdiagnosis/
  
  
• Allergy and Asthma FAQ Home Page
  This is an informal gathering of the net wisdom on allergies and asthma. It contains links to various (Web and non-Web) sources of information. This started as the misc. kids Allergy and Asthma FAQ, so a certain amount of this information is geared towards parents, but there is plenty of information for adults, too.
  www.cs.unc.edu/~kupstas/FAQ.html

• ALS (Lou Gehrig's Disease) Association
  The ALS (Amytrophic Lateral Sclerosis) Association site offers a clear lay-language description of the disease, referral information for local chapters and support groups, and a description of publications that may be ordered from the Association.
  www.alsa.org/

• ALS (Lou Gehrig's Disease) Information & Resources
  This page is from the Doctor's Guide to the Internet and is a comprehensive list of links to medical news and alerts, drug information, discussion groups and newsgroups, and other online ALS information.
  www.pslgroup.com/ALS.HTM

• The Alzheimer's Association
  This is the oldest and largest national voluntary health organization dedicated to research for the causes, cure, and prevention of Alzheimer's disease and to providing education and support services to Alzheimer's patients, their families and caregivers.
  www.alz.org//

• The Arc National Headquarters
  The Arc (formerly Association for Retarded Citizens of the United States) is the country's largest voluntary organization committed to the welfare of all children and adults with mental retardation and their families.
  www.thearc.org/

• Arthritis Foundation
  The purpose of the Arthritis Foundation is to support research to find the cure for and prevention of arthritis and to improve the quality of life for those affected by arthritis.
  www.arthritis.org/

• Attention Deficit Disorder (ADD)
  Bob Seay is your Attention Deficit Disorder guide for the Mining Company.
  add.miningco.com/

• ADDA (National Attention Deficit Disorder Association)
  The National Attention Deficit Disorder Association...is an organization built around the needs of adults and young adults with ADD and ADHD. We seek to serve individuals with ADD, as well as those who love, live with, teach, counsel, and treat those who do.
  www.add.org/

• Children and Adults with Attention Deficit Disorders (CH.A.D.D.)
  This is a nonprofit parent-based organization formed to better the lives of individuals with attention deficit disorders and those who care for them.
  chadd.org/

• Autism Resources
  Index of online information and resources on the developmental disabilities Autism and Asperger's Syndrome.
  www.vaporia.com/autism/

• Autism Society of America
  Serving the needs of individuals with autism and their families through advocacy, education, public awareness, and research since 1965.
  www.autism-society.org/
  
  
• Autism Asperger Resource Center (AARC)
  The Purpose of the AARC is to foster the behavioral, academic, and social development of persons with Autism, Asperger's Disorder, and related exceptionalities by offering a variety of services to individuals and support networks.
  www.autismasperger.org/
  

• Back and Neck Injury About.com Guide
  Donna Glett and Diane Hunter are your Back and Neck Injury guide for the About.com Guide to: Back and Neck Injury.
  deafness.about.com

   

• Chronic Fatigue Syndrome (CFS)
  CFS is an emerging illness characterized by debilitating fatigue (experienced as exhaustion and extremely poor stamina), neurological problems, and a variety of flu-like symptoms.
  www.cfs-news.org
  
  

• Conill Institute for Chronic Illness 
  Because the independence and respect we treasure can be lost in the unsettling life of disability or chronic illness, the Conill Institute has established comprehensive educational programs to reach patients and their families, physicians and other healthcare providers, employers and selected industries whose customers may have special needs.
  www.conillinst.org
  
  

• Net Connections for Communication Disorders and Sciences
  Net Connections for Communication Disorders and Sciences - an Internet Guide by Judith Maginnis Kuster. The Internet provides access to many valuable resources for professionals and students in communication disorders and sciences as well as for persons with communication disabilities and those who are part of their lives.
  www.mnsu.edu/comdis/kuster2/welcome.html
  
  
• Cerebral Palsy and Aging
  Information and links to other sites on Cerebral Palsy and Aging.
  www.geocities.com/Tokyo/7970/cpage.htm

• Cerebral Palsy Infomation Central (CPIC)
  The aim of the CPIC web page is to provide a central location where you can find out more about cerebral palsy and links to other web sites dealing with Cerebral Palsy.
  http://geocities.com/aneecp/
  
  
• Step by Step real life experiences with cerebral palsy
  Step by Step real life experiences with cerebral palsy by Colleen Rose offers a comprehensive perspective using a combined method of therapy to teach the brain through repetition and various techniques that parents can utilize to accomplish unbelievable goals for their children. Colleen was able to teach her daughter how to live independently through the use of some very effective rehabilitation techniques and common sense approaches.
  www.mdtap.org/tt/1999.03/4-art.html
  
  
• UCPA - United Cerebral Palsy Associations
  Advancing the independence of people with disabilities
  www.ucpa.org
  
  
• Dana Alliance
  At this site you will find extensive information about the programs, activities, and publications of the Dana Foundation and the Dana Alliance, as well as material of interest to any one concerned about brain diseases and disorders and about innovative reforms that strengthen early education. The Dana Alliance, a nonprofit organization of more than 170 neuroscientists, was formed to help provide information about the personal and public benefits of brain research. Today one out of five Americans suffers from a brain-related disease, or disorder, ranging from cocaine addiction to learning disabilities from Alzheimer's disease to spinal cord injuries.
  www.dana.org
  
  
• Online Depression Screening Test
  www.med.nyu.edu/Psych/screens/depres.html
  
  
• American Diabetes Association's (ADA) center for online diabetes information.
  ADA's purpose is to prevent and cure diabetes and to improve the lives of all people affected by diabetes.
  www.diabetes.org
  
  
• Down Syndrome WWW Page
  The Down Syndrome WWW Page was established in February of 1995 and has been (and still is) compiled from the contributions of members of the Down Syndrome Listserv and others.
  www.nas.com/downsyn/

• Family Empowerment Network
  Their focus is primarily on Down Syndrome issues, but they also touch on a number of other relevent topics.
  www.downsyndrome.com/

• National Down Syndrome Society
  The National Down Syndrome Society was established in 1979 to increase public awareness about Down syndrome; to assist families in addressing the needs of children born with this genetic condition; and to sponsor and encourage scientific research.
  www.ndss.org
  
  
• Rehabilitation Research and Training Center on Aging with Mental Retardation (RRTCAMR) The RRTCAMR is a national resource for researchers, planners, providers, self-advocates, families and students in the field of aging and mental retardation.
  www.uic.edu/orgs/rrtcamr/index.html
  
  
• The International Dyslexia Association (IDA)
  The International Dyslexia Association (formally The Orton Dyslexia Society) is an international, 501(c)(3) non-profit, scientific and educational organization dedicated to the study and treatment of the learning disability, dyslexia.
  http://www.interdys.org/ 
  
  
• Dyslexia My Life
  Dyslexia My Life, Pages of Info on Dyslexia and Learning, by Girard Sagmiller, a Dyslexic
  www.dyslexiamylife.org/
  
  
• Dyslexia Online
  Dyslexia Online is an online magazine offering new perspectives on Dyslexia.
  www.audiblox2000.com/dyslexia_dyslexic/dyslexia.htm
  
  
• Dyslexia Symptoms & Dyslexia Signs
  A resource on the symptoms and signs of dyslexia, including the possible effects of this disorder on math and handwriting.
  http://dyslexia-symptoms.learninginfo.org
  
  
• Dystonia Medical Research Foundation (DMRF)
  DMRF reports medical research, fund raising, new developments, and support group news in newsletter/magazine, "Dystonia Dialogue". Dystonia is the term used to describe an illness dominated by involuntary spasms and muscle contractions that induce abnormal movements and postures. Such dystonic spasms may affect one part of the body, such as the eyes, neck or a limb; a larger region, such as the neck and arms; or the whole body.
  www.dystonia-foundation.org/

• National Spasmodic Torticollis Association Inc.(NSTA) National Headquarters
  NSTA reports research, new developments, alternative healing approaches and support group news in newsletter/magazine, "NSTA-Remember You Are Not Along". Spasmodic Torticollis (ST) is a neurological disorder that affects the muscles of the neck causing the head to pull, turn or jerk toward the shoulder. It is generally a chronic condition which may last indefinitely. For more information on ST, a form of Dystonia, check this page. The NSTA of California presents The Millennium International Spasmodic Torticollis Symposium 2000 held from May 5th to May 7th in Huntington Beach, California.
  www.torticollis.org

• Spasmodic Torticollis/Dystonia Inc. (ST/DYSTONIA, Inc.)
  ST/DYSTONIA, Inc. reports research, new developments, alternative healing approaches and support group news in newsletter/magazine, "The ST'rs Newsmagazine". ST/DYSTONIA, Inc. is an Association dedicated to helping ST'rs.
  www.spasmodictorticollis.org

• Spasmodic Torticollis Recovery Clinic, INC.
  Have you tried everything possible and reached the end of your rope with S.T.? The Spasmodic Torticollis Recovery Clinic (S.T.R.C.) is designed for those who have. S.T.R.C. is a non-medical, risk free, natural program, that is based upon a method tried and proven effective in eliminating the painful, crippling symptoms of S.T. It's structured to encourage an ongoing recovery of the whole person - body, soul, and spirit; and designed to offer personalized and compassionate care.
  www.stclinic.com/
  
  
• Epilepsy Foundation
  The Epilepsy Foundation (also known as the Epilepsy Foundation of America) is the national organization that works for people affected by seizures through research, education, advocacy and service. We are an organization of volunteers committed to the prevention and cure of epilepsy and a positive quality of life for everyone who lives with seizure disorders. Our current strategic goals include broadening and strengthening of research, providing individuals and families with easy access to reliable information, and assuring access to appropriate medical care for those affected by seizures.
  www.efa.org
  
  

• Epilepsy Resources
  The internet has a large amount of information about epilepsy - which means that it can be difficult to find what you need. This page provides a route into Aladdin's cave. It provides links to the different sorts of information available through the internet and, in the case of the world wide web, to the best directories of links on epilepsy.
  www.mynchen.demon.co.uk/Epilepsy/General/Epilepsy_resources.htm
  
  

• Understanding Epilepsy
  Chanel's Site is to help others understand and learn ways of dealing with Epilepsy Disorder (also to dispel "myths" about epilepsy disorder based on ignorance and fear), please visit Epilepsy over 300 Links Site, as well as Chronic illness over 500 Links Site, "Understanding Migraines Site", My Best friend KT's Memorial page, Awards & more
  http://community-1.webtv.net/MzMinnieMouse/Understanding
  
  

• Fibromyalgia FAQ for Patients
  A Patient's Frequently Asked Questions about Fibromyalgia
  www.hsc.missouri.edu/fibro/fm-pt.html
  
  

• Fibromyalgia Solution
  Mary Moeller and her daughter were diagnoised with Fibromyalgia. Exercise, meditation, and antidepressants didn't work. Mary, with a nursing background and an interest in more natural means of controlling the symptoms, found some of the answers needed to keep symptoms at bay for herself as well as her daughter. With the help of many health professionals, Mary has put together a program to help others with fibromyalgia. These programs, which are conducted nation wide, offer help and hope for others who have been afflicted with this medical "challenge". If you have Fibromyalgia read about this program!!!
  www.fibrosolutions.com/
  
  
• National Fibromyalgia Research Association (NFRA)
  NFRA is an FMS activist group located in Salem, Oregon. Our mission statement, "Dedicated to education, treatment and finding a cure for fibromyalgia" is the foundation of our organization.
  www.nfra.net/
  
  
• FMily
  "FMily" (a division of MedSupport FSF International) is a community of friends providing positive support, information and most of all understanding and belief for Fibromyalgia sufferers. We all understand each others pain, all having shared the effects of Fibromyalgia, either by itself or more commonly in association with Myofascial Pain, and or Chronic Fatigue Syndrome. As we are all sufferers, relations or friends of those that are, we truly understand in a way that others never can.
  www.medsupport.org/FMily/#Fibro Links
  
  
• Learning Disabilities Association of America (LDA)
  LDA a national volunteer organization which provides help to parents, professionals, and individuals with learning disabilities.
  www.ldanatl.org/
  
  
• Lupus Foundation of America - Living With Lupus
  The mission of the Lupus Foundation of America is to: Improve the quality of life of people with lupus, their family and friends through detection of the disease, alleviation of suffering, and eradication of lupus through research. The "Living With Lupus" website strives to contribute to the accomplishment of this mission by providing those within the Internet community affected by lupus a source of up-to-date information and support.
  www.lupus.org/
  
  
• Internet Mental Health
  Knowledge must be shared. Effective, well-researched treatments exist for most mental disorders, yet the majority of people who have severe mental illness are not treated. Internet Mental Health's goal is to improve understanding, diagnosis, and treatment of mental illness throughout the world.
  www.mentalhealth.com/
  
  
• Knowledge Exchange Network (KEN)
  The National Mental Health Services KEN, a one stop source of information and resources on mental health.
  www.mentalhealth.org/

• The Psychology Insider
  The Psychology Insider's aim is to create awareness and to foster intelligent debate within areas of mental health where they feel particularly capable. They plan to accomplish this by offering publications, presentations and consultation services. They will keep you apprised of recent developments in mental health, healthcare and medicine through their Websites, Self-help, Software and Journals pages. The information is free and you may download anything you wish. They hope you find it helpful. Let them know. Check their NEWS page frequently.
  www.farrell-posner-etc.com/
  
  
• WE MOVE
  WE MOVE, is dedicated to increasing awareness of neurologic movement disorders. Movement disorders are Dystonia, Parkinson's Disease, and Spasticity. WE MOVE's goal is to make early diagnosis, up-to-date treatment and patient support a reality for all people living with movement disorders.
  www.wemove.org

• The Movement Disorder Society
  The Society objectives are: To provide international forums to disseminate information on recent advances in both clinical and basic science pertinent to movement disorders. To encourage research in both clinical and basic sciences related to movement disorders. To enhance the education of physicians and the public about movement disorders. To enhance the quality of care of patients with movement disorders, through its support of research and education.
  www.movementdisorders.org/

• MedSupport FSF International
  MedSupport FSF International is a non-profit Internet site that provides support and information for Multiple Sclerosis patients and their families. We are committed to helping those afflicted with this chronic illness because we believe it is essential to have a trustworthy and informative site where individuals can obtain knowledge about MS in a stress-free, flame-free atmosphere as well as build long lasting friendships. MedSupport provides 24 hour chat rooms (both moderated and non-moderated), Forums, A bi-monthly newsletter, Multiple Sclerosis FAQ that is regularly updated, MS Links to other sites on the internet, A giftshop area, and Health and World News. As we are all sufferers, relations or friends of those that are, we truly understand in a way that others never can. Our philosophy at MedSupport FSF is "You have to CARE to make a difference."
  www.medsupport.org/

• National Multiple Sclerosis Society
  The National Multiple Sclerosis Society is dedicated to ending the devastating effects of multiple sclerosis.
  www.nmss.org/

• Muscular Dystrophy From Australia
  www.mda.org.au/

• Muscular Dystrophy Association - USA
  www.mdausa.org/

• LIVING WITH MYASTHENIA
  The purpose of this website is to connect myasthenics with information and most importantly with each other. Too many myasthenics have lived alone with their myasthenia gravis for 20 - 30 - 40 years or more.
  pages.prodigy.com/lifewithmg
  
  
• American Parkinson Disease Association, Inc. (APDA)
  The APDA, Inc. was founded in 1961 to "ease the burden and find a cure" for Parkinson's disease. Headquartered in New York, the organization focuses its energies on research, patient support, education and raising public awareness of the disease. The APDA national office also coordinates the efforts of 65 chapters, 57 information & referral centers and 250 affiliated support groups accross the nation.
  www.apdaparkinson.org
  
  
• The National Parkinson Foundation, Inc. (NPF)
  NFP'S Mission is To find the cause and cure for Parkinson's disease and related neurodegenerative disorders through research. To educate general medical practitioners to detect the early warning signs of Parkinson's disease. To educate patients, their caregivers and the general public. To improve the quality of life for both patients and their caregivers.
  www.parkinson.org
  
  
• Polio Connection of American
  The Polio Connection of American Home Page has a lot of information on it. Their goals include but are not limited to: Finding and alerting all Polio Survivors as to the 'Late Effects of Polio' and directing them to appropriate areas for assistance, be it medical or financial; Doing everything we can to eliminate future cases of Polio; Developing a Polio Movement into a Polio Advocacy Group and doing all we can to secure funding for research on the 'Late Effects of Polio' and to meet our other needs. Polio Connection Publications include: Post-Polio Syndrome Information Books, Polio Connection Newsletter, Polio Vaccine Coverup Booklet.
  www.geocities.com/w1066w/
  
  
• Gazette International Networking Institute (GINI)
  GINI's mission is to enhance the lives and independence of polio survivors, ventilator users, and others living with disabilities by promoting networking and advocacy among these individuals, health care professionals, and service providers; by publishing information; by funding research; and by coordinating international conferences.
  www.post-polio.org/
  
  
• Lincolnshire, England Post-Polio Network
  The core of this site is a library of well over one hundred full text articles on Post-Polio conditions, many from peer reviewed medical journals. The library is catalogued to assist reading order and new articles are added typically every few weeks. A categorized directory of polio resources is also provided with every entry having a description. Polio news items from around the world are regularly included in the NewsBites section.
  www.zynet.co.uk/ott/polio/lincolnshire/
  
  
• National Organization for Rare Disorders (NORD)
  NORD is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
  www.rarediseases.org/
  
  

• Ask the Doctor - Spinal Cord Injuries Questions
  "Ask the Doctor", your newest resource for healthy living and medical inquiries, provides individuals with Spinal Cord Injuries (SCI) answers to a diverse array of health related queries. "Ask the Doctor" is an informational and educational program provided by National Rehabilitation Hospital ("NRH") to provide general information on spinal cord injury. Ask the Doctor provides individuals with Spinal Cord Injuries (SCI) answers to a diverse array of health related queries. Whether you are worried about the risk factors associated with osteoporosis, curious about cardiovascular disease prevention, or eager to develop a personal weight loss plan sensitive to your nutritional needs, Ask the Doctor offers information and guidance for people living with SCI. Information posted on the "Ask the Doctor" site is provided solely for informational and educational purposes only and is not intended nor implied to be the diagnosis or treatment of a medical condition or a substitute for professional medical advice relative to your specific medical conditions. Always seek the advice of your physician or other qualified health provider prior to starting any new treatment or with any questions you may have regarding your medical condition.
  www.ilru.org/html/projects/SCI/index.htm
  
  

• Spina Bifida Association of America (SBAA)
  SBAA was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of over 70 chapters nationwide. SBAA is comprised of individuals with spina bifida, family members, parents, professionals, adults with spina bifida and interested members of the general public.
  www.sbaa.org/

• National Spinal Cord Injury Hotline
  The National Spinal Cord Injury Hotline is a toll-free information and referral program for people whose lives have been affected by paralysis. Established in 1984, the hotline is a non-profit organization, and is staffed by six clinical/information specialists. The program assists individuals and their families who have sustained a traumatic spinal cord injury (SCI) resulting in paraplegia or quadriplegia. Callers are guided to area resources, programs, products, and support groups to help them live more independent lives. The Hotline staff can guide people through the bewildering array of questions they face after a paralyzing injury. Questions range from home modifications to child rearing, from medical equipment to fertility.
  www.scihotline.org/

• National Spinal Cord Injury Association
  This is the international resource for people living with spinal cord injury.
  www.spinalcord.org
  
  

• Rehabilitation Research and Training Center (RRTC) on Spinal Cord Injury: Promoting Health and Preventing Complications through Exercise
  This website will provide you with useful information on spinal cord injury and the prevention of secondary conditions through exercise and physical activity. Check back on this page often, as they will be posting new RRTC information, findings, and events as they become available.
  www.sci-health.org
  
  

• Spinal Cord Injury Information Network
  The Spinalcord Injury Information Network is funded through a grant to the Rehabilitation Research and Training Center on Secondary Conditions of Spinal Cord Injury. Look here first for latest news, research projects, and happenings. There is also information and statistics about SCI.
  www.spinalcord.uab.edu 
  
  
• Spinal Cord Injury Information Pages (SCI Info Pages)
  The SCI Info Pages site is a free and informative resource for those suffering from a spinal cord injury or other disabling injuries or diseases of the spine. It is meant to be a "best of the web" site for SCI health information. Visit regularly for updated resources, new features, links and more.
  www.sci-info-pages.com
  
  

• United Spinal Association
  United Spinal Association has expanded opportunities for people with Spinal Cord Disabilities for over 60 years. United Spinal Association has a monthly online magazine called Action, and it's available to everyone who is a member of the United Spinal Association. Membership is free to those with injuries, and in addition to getting the magazine, members have access to help with legal issues, housing problems, and even travel arrangements.
  www.unitedspinal.org
  
  

• The Miami Project
  The Miami Project to Cure Paralysis, a Center of Excellence at the University of Miami School of Medicine, is the world's largest, most comprehensive research center dedicated to finding more effective treatments and, ultimately, a cure for paralysis that results from spinal cord injury.
  www.themiamiproject.org
  
  
• Tourette Syndrome Association, Inc.
  Founded in 1972 in Bayside, New York, the Tourette Syndrome Association, Inc., or TSA, is the only national voluntary non-profit membership organization in this field. Its mission is to identify the cause of, find the cure for and control the effects of this disorder. Today, TSA has grown into a major national health-related organization with approximately 50 U. S. Chapters and 300 support groups, and International Contacts around the world. The Association develops and disseminates educational material to individuals, professionals, and to agencies in the fields of health care, education and government; coordinates support services to help people and their families cope with the problems that occur with TS; funds research that will ultimately find the cause of and cure for TS and, at the same time, lead to improved medications and treatments.
  www.tsa-usa.org

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